Understanding the experience of the caregiver of a family member with incurable cancer

This study aimed at understanding the experience of taking care of a family member who has incurable cancer. It consists of a study using a qualitative approach. Participants were five family caregivers of cancer patients with incurable disease, hospitalized in a center located in the interior of Sã...

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Detalhes bibliográficos
Autores: Cruzeiro, Natália Fernandes, Pinto, Maria Helena, Cesarino, Claudia Bernardi, Pereira, Adriana Pelegrini dos Santos
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2012
País:Brasil
Recursos:Universidade Federal de Goiás (UFG)
Repositorio:Revista Eletrônica de Enfermagem
Idioma:portugués
OAI Identifier:oai:ojs.revistas.ufg.br:article/14171
Acesso em linha:https://revistas.ufg.br/fen/article/view/14171
Access Level:acceso abierto
Palavra-chave:Oncologic Nursing
Hospice Care
Family Nursing.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermagem Oncológica
Enfermagem Familiar.
Descrição
Resumo:This study aimed at understanding the experience of taking care of a family member who has incurable cancer. It consists of a study using a qualitative approach. Participants were five family caregivers of cancer patients with incurable disease, hospitalized in a center located in the interior of São Paulo. Data were collected in the period between October and January of 2009/2010, through interviews and the use of content analysis. The following categories were identified: Purpose of being a caregiver; Changes resulting from the role of caregiver; Environment of death; Feelings generated in the caregiver; and Support networks for the caregiver. The present study allowed greater understanding of the situation of family caregivers in their historical and sociocultural context, which is individual, relative and conditional. It was made clear that the family caregiver must be the healthcare team’s target of attention, including understanding the meaning attributed to the disease and palliative treatment for the care planning of the family unit in the final stage of life. Descriptors: Oncologic Nursing; Hospice Care; Family Nursing.