Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia

In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of...

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Autores: Alegre-Agís, Elisa, García-Santesmases, Andrea, Pié Balaguer, Assumpció, Martínez Hernáez, Ángel, Bekele, Deborah, Morales Sáez, Nicolás, Serrano-Miguel, Mercedes
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2023
País:España
Institución:Universidad de Barcelona
Repositorio:Dipòsit Digital de la UB
OAI Identifier:oai:diposit.ub.edu:2445/207206
Acceso en línea:https://hdl.handle.net/2445/207206
Access Level:acceso abierto
Palabra clave:Malalts mentals
Mares i fills
Antropologia mèdica
Violència contra les dones
Investigació qualitativa
Catalunya
Cuidadores
Mentally ill
Mother and child
Medical anthropology
Violence against women
Qualitative research
Catalonia
Women caregivers
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spelling Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in CataloniaAlegre-Agís, ElisaGarcía-Santesmases, AndreaPié Balaguer, AssumpcióMartínez Hernáez, ÁngelBekele, DeborahMorales Sáez, NicolásSerrano-Miguel, MercedesMalalts mentalsMares i fillsAntropologia mèdicaViolència contra les donesInvestigació qualitativaCatalunyaCuidadoresMentally illMother and childMedical anthropologyViolence against womenQualitative researchCataloniaWomen caregiversIn most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of 'nested dependencies', which create social isolation. This produces the conditions of 'reactionary care', practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.2023info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/2445/207206Articles publicats en revistes (Treball Social)reponame:Dipòsit Digital de la UBinstname:Universidad de BarcelonaInglésReproducció del document publicat a: https://doi.org/10.1007/s11013-022-09788-z2023, vol. 47, p. 790-813https://doi.org/10.1007/s11013-022-09788-zcc-by (c) Alegre-Agís et al., 2023http://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessoai:diposit.ub.edu:2445/2072062026-05-27T06:46:51Z
dc.title.none.fl_str_mv Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
title Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
spellingShingle Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
Alegre-Agís, Elisa
Malalts mentals
Mares i fills
Antropologia mèdica
Violència contra les dones
Investigació qualitativa
Catalunya
Cuidadores
Mentally ill
Mother and child
Medical anthropology
Violence against women
Qualitative research
Catalonia
Women caregivers
title_short Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
title_full Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
title_fullStr Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
title_full_unstemmed Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
title_sort Unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in Catalonia
dc.creator.none.fl_str_mv Alegre-Agís, Elisa
García-Santesmases, Andrea
Pié Balaguer, Assumpció
Martínez Hernáez, Ángel
Bekele, Deborah
Morales Sáez, Nicolás
Serrano-Miguel, Mercedes
author Alegre-Agís, Elisa
author_facet Alegre-Agís, Elisa
García-Santesmases, Andrea
Pié Balaguer, Assumpció
Martínez Hernáez, Ángel
Bekele, Deborah
Morales Sáez, Nicolás
Serrano-Miguel, Mercedes
author_role author
author2 García-Santesmases, Andrea
Pié Balaguer, Assumpció
Martínez Hernáez, Ángel
Bekele, Deborah
Morales Sáez, Nicolás
Serrano-Miguel, Mercedes
author2_role author
author
author
author
author
author
dc.subject.none.fl_str_mv Malalts mentals
Mares i fills
Antropologia mèdica
Violència contra les dones
Investigació qualitativa
Catalunya
Cuidadores
Mentally ill
Mother and child
Medical anthropology
Violence against women
Qualitative research
Catalonia
Women caregivers
topic Malalts mentals
Mares i fills
Antropologia mèdica
Violència contra les dones
Investigació qualitativa
Catalunya
Cuidadores
Mentally ill
Mother and child
Medical anthropology
Violence against women
Qualitative research
Catalonia
Women caregivers
description In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of 'nested dependencies', which create social isolation. This produces the conditions of 'reactionary care', practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.
publishDate 2023
dc.date.none.fl_str_mv 2023
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/207206
url https://hdl.handle.net/2445/207206
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Reproducció del document publicat a: https://doi.org/10.1007/s11013-022-09788-z
2023, vol. 47, p. 790-813
https://doi.org/10.1007/s11013-022-09788-z
dc.rights.none.fl_str_mv cc-by (c) Alegre-Agís et al., 2023
http://creativecommons.org/licenses/by/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv cc-by (c) Alegre-Agís et al., 2023
http://creativecommons.org/licenses/by/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv Articles publicats en revistes (Treball Social)
reponame:Dipòsit Digital de la UB
instname:Universidad de Barcelona
instname_str Universidad de Barcelona
reponame_str Dipòsit Digital de la UB
collection Dipòsit Digital de la UB
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15.198674

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