Nutrición parenteral domiciliaria en España, 2019: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registr...

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Detalles Bibliográficos
Autores: Wanden-Berghe, Carmina, Virgili Casas, Nuria, Cuerda Compes, Cristina, Ramos Boluda, Esther, Pereira Cunill, Jose Luis, Maiz Jimenez, Maria Irene, Burgos Pelaez, Rosa, Gomez Candela, Carmen, Penacho Lazaro, Maria Angeles, de Luis Roman, Daniel Antonio, Zugasti Murillo, Ana, Martinez Faedo, Ceferino, Alvarez Hernandez, Julia, Campos Martin, Cristina, Rioja-Vazquez, Rosalia, Irles Rocamora, Juan Antonio, Diaz Guardiola, Patricia, Sanz Paris, Alejandro, Matia Martin, Pilar, Carabana Perez, Fatima, Martin Folgueras, Tomas, Martin Palmero, Maria Angela, Luengo Perez, Luis Miguel, Martinez Costa, Cecilia, Tejera Perez, Cristina, Arraiza Irigoyen, Carmen, Sanchez-Vilar Burdiel, Olga, Garcia Delgado, Yaiza, Ponce Gonzalez, Miguel A, Mauri Roca, Silvia, Garcia Zafra, Maria Victoria, German Diaz, Marta, Moran Lopez, Jesus M, Molina Baeza, Begona, Gonzalo Marin, Montserrat, Sanchez Sanchez, Rebeca, Calanas Continente, Alfonso, Garde Orbaiz, Carmen, Martinez Olmos, Miguel Angel, Joaquin Ortiz, Clara, Suarez Llanos, Jose Pablo, Forga Visa, Maria de Tallo, Gil Martinez, M Carmen, Carrera Santaliestra, Maria Jose, Padin Lopez, Susana, Lobo, Gabriela, Apezetxea Celaya, Antxon, Ballesta Sanchez, Carmen, Bonada Sanjaume, Anna, Canovas Gaillemin, Barbara, Cardona Pera, Daniel, Garcia Puente, Ignacio, Higuera Pulgar, Isabel, Miserachs Aranda, Nuria, Del Olmo Garcia, Maria Dolores, Palma Milla, Samara, Pares Marimon, Rosa Maria, Pintor de la Maza, Begona, Sanchez Martos, Eva Angeles
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2021
País:España
Institución:INCLIVA
Repositorio:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVA
OAI Identifier:oai:incliva.fundanetsuite.com:p16082
Acceso en línea:https://incliva.portalinvestigacion.com/publicaciones/16082
Access Level:acceso abierto
Palabra clave:Nutrición parenteral domiciliaria. Nutrición parenteral. Soporte nutricional. Cuidados domiciliarios. Registros. Epidemiología.
Descripción
Sumario:Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019. Results: a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was "palliative oncological" and "others" (21.0 %). In children, it was Hirschsprung's disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral. Conclusions: the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable.

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