Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA

Introduction: colorectal cancer (CRC) screening programmes can reduce incidence and mortality from this condition if adherence to them is high. As patient experience and satisfaction are key factors in determining adherence to screening programmes, they need to be measured. Furthermore, to promote h...

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Autores: Selva, Anna, López, Pilar, Puig, Teresa, Macià Guilà, Francesc Assís, Selva, Clara, Álvarez-Pérez, Yolanda, Terraza, Rebeca, Burón, Andrea, Machlab, Salvador Tarek, Pericay, Carles, Solà, Ivan, Torà, Núria, Rodríguez, Vanesa, Barrufet González, Cristina, Aymar, Anna, Baré, Marisa
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2022
País:España
Recursos:Universitat Pompeu Fabra
Repositorio:Repositorio Digital de la UPF
OAI Identifier:oai:repositori.upf.edu:10230/54351
Acesso em linha:http://hdl.handle.net/10230/54351
http://dx.doi.org/10.1136/bmjopen-2021-057687
Access Level:acceso abierto
Palavra-chave:Colorectal cancer screening
Colorectal neoplasms
Decision Making, Shared
Patient experience
Patient satisfaction.
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spelling Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESASelva, AnnaLópez, PilarPuig, TeresaMacià Guilà, Francesc AssísSelva, ClaraÁlvarez-Pérez, YolandaTerraza, RebecaBurón, AndreaMachlab, Salvador TarekPericay, CarlesSolà, IvanTorà, NúriaRodríguez, VanesaBarrufet González, CristinaAymar, AnnaBaré, MarisaColorectal cancer screeningColorectal neoplasmsDecision Making, SharedPatient experiencePatient satisfaction.Introduction: colorectal cancer (CRC) screening programmes can reduce incidence and mortality from this condition if adherence to them is high. As patient experience and satisfaction are key factors in determining adherence to screening programmes, they need to be measured. Furthermore, to promote highly patient-centred healthcare, the perception of patients regarding shared decision-making during CRC screening needs to be known. This study aims to assess the experience, satisfaction and participation in decision-making of participants in a CRC screening programme and of patients diagnosed with CRC through this programme in relation to the diagnostic and therapeutic processes of cancer. Methods and analysis: the CyDESA study is a mixed-methods study with a four phase sequential design. In phase 1, we will conduct a systematic review of patient-reported experience measures (PREMs) for patient experience or satisfaction with CRC screening. In case no located PREM can be applied, in phase 2, we will develop a new PREM. We will use the Delphi methodology to reach consensus among experts and patients and will conduct a pilot test of the developed PREM. Phase 3 is a multicentric cross-sectional study based on self-reported questionnaires that will be conducted at three Spanish hospitals (n=843). The objective is to find out about the experience, satisfaction and participation in decision-making of participants in the CRC screening programme who have had a positive screening test result according to their final screening diagnosis: false positives, colorectal polyps or CRC. Phase 4 is a qualitative phenomenological study based on individual interviews. It will explore the experiences of participants in the CRC screening programme and of those diagnosed with CRC. Ethics and dissemination: ethics approval by the Ethics Committees of Corporació Sanitària Parc Taulí, Hospital de Sant Pau and Parc de Salut Mar. Findings will be published in peer-reviewed journals and presented at conferences.BMJ Publishing Group202220222022info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttp://hdl.handle.net/10230/54351http://dx.doi.org/10.1136/bmjopen-2021-057687reponame:Repositorio Digital de la UPFinstname:Universitat Pompeu FabraInglésThis is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.http://creativecommons.org/licenses/by-nc/4.0/info:eu-repo/semantics/openAccessoai:repositori.upf.edu:10230/543512026-06-12T07:21:37Z
dc.title.none.fl_str_mv Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
title Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
spellingShingle Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
Selva, Anna
Colorectal cancer screening
Colorectal neoplasms
Decision Making, Shared
Patient experience
Patient satisfaction.
title_short Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
title_full Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
title_fullStr Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
title_full_unstemmed Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
title_sort Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
dc.creator.none.fl_str_mv Selva, Anna
López, Pilar
Puig, Teresa
Macià Guilà, Francesc Assís
Selva, Clara
Álvarez-Pérez, Yolanda
Terraza, Rebeca
Burón, Andrea
Machlab, Salvador Tarek
Pericay, Carles
Solà, Ivan
Torà, Núria
Rodríguez, Vanesa
Barrufet González, Cristina
Aymar, Anna
Baré, Marisa
author Selva, Anna
author_facet Selva, Anna
López, Pilar
Puig, Teresa
Macià Guilà, Francesc Assís
Selva, Clara
Álvarez-Pérez, Yolanda
Terraza, Rebeca
Burón, Andrea
Machlab, Salvador Tarek
Pericay, Carles
Solà, Ivan
Torà, Núria
Rodríguez, Vanesa
Barrufet González, Cristina
Aymar, Anna
Baré, Marisa
author_role author
author2 López, Pilar
Puig, Teresa
Macià Guilà, Francesc Assís
Selva, Clara
Álvarez-Pérez, Yolanda
Terraza, Rebeca
Burón, Andrea
Machlab, Salvador Tarek
Pericay, Carles
Solà, Ivan
Torà, Núria
Rodríguez, Vanesa
Barrufet González, Cristina
Aymar, Anna
Baré, Marisa
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Colorectal cancer screening
Colorectal neoplasms
Decision Making, Shared
Patient experience
Patient satisfaction.
topic Colorectal cancer screening
Colorectal neoplasms
Decision Making, Shared
Patient experience
Patient satisfaction.
description Introduction: colorectal cancer (CRC) screening programmes can reduce incidence and mortality from this condition if adherence to them is high. As patient experience and satisfaction are key factors in determining adherence to screening programmes, they need to be measured. Furthermore, to promote highly patient-centred healthcare, the perception of patients regarding shared decision-making during CRC screening needs to be known. This study aims to assess the experience, satisfaction and participation in decision-making of participants in a CRC screening programme and of patients diagnosed with CRC through this programme in relation to the diagnostic and therapeutic processes of cancer. Methods and analysis: the CyDESA study is a mixed-methods study with a four phase sequential design. In phase 1, we will conduct a systematic review of patient-reported experience measures (PREMs) for patient experience or satisfaction with CRC screening. In case no located PREM can be applied, in phase 2, we will develop a new PREM. We will use the Delphi methodology to reach consensus among experts and patients and will conduct a pilot test of the developed PREM. Phase 3 is a multicentric cross-sectional study based on self-reported questionnaires that will be conducted at three Spanish hospitals (n=843). The objective is to find out about the experience, satisfaction and participation in decision-making of participants in the CRC screening programme who have had a positive screening test result according to their final screening diagnosis: false positives, colorectal polyps or CRC. Phase 4 is a qualitative phenomenological study based on individual interviews. It will explore the experiences of participants in the CRC screening programme and of those diagnosed with CRC. Ethics and dissemination: ethics approval by the Ethics Committees of Corporació Sanitària Parc Taulí, Hospital de Sant Pau and Parc de Salut Mar. Findings will be published in peer-reviewed journals and presented at conferences.
publishDate 2022
dc.date.none.fl_str_mv 2022
2022
2022
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/10230/54351
http://dx.doi.org/10.1136/bmjopen-2021-057687
url http://hdl.handle.net/10230/54351
http://dx.doi.org/10.1136/bmjopen-2021-057687
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv http://creativecommons.org/licenses/by-nc/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv http://creativecommons.org/licenses/by-nc/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv BMJ Publishing Group
publisher.none.fl_str_mv BMJ Publishing Group
dc.source.none.fl_str_mv reponame:Repositorio Digital de la UPF
instname:Universitat Pompeu Fabra
instname_str Universitat Pompeu Fabra
reponame_str Repositorio Digital de la UPF
collection Repositorio Digital de la UPF
repository.name.fl_str_mv
repository.mail.fl_str_mv
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